Imagine a phone text conversation between two mothers of special needs children. If you could eaves- drop on only one side of the conversation, it might go something like this:
Hello, dear friend. I’m sorry to text at
3:00 in the morning, but I had a feeling
you’d still be up. How’s Johnny doing?
He’s very tired after all the doctor appointments? Must have wiped him out!
And you, too?
Oh, you were up worrying? Yes, I’ve
been there, done that—many times. So
many things out of your control, so many
worries, and so many things to do—you
just can’t sleep. I’ll stay up with you if it
No, really, it’s okay. I’m still venting Abby’s g-tube. Her tummy is so full of air tonight. I’ll be up for a while. What did the
doctor say at your appointment today?
Oh, honey, I’m sorry. So they can’t
start that new treatment? You were really
hopeful about that one. Are there other
Yes, I remember you talking about that
medicine. You were hoping it would help
with the symptoms, but the side effects
sounded pretty bad. The doctor wanted
to try it, and see what happens? What do
You’re right; he is a great doctor, and
it’s important to listen to what he recommends and why. You’re very blessed to
have him working with Johnny. But you
and Sam have to make the final decision.
What do you think?
Of course I understand! It’s so hard to
make these decisions. There’s no easy, clear
answer, friend. We’ve had it go both ways,
where sometimes it really helped, and
sometimes it created new problems. Get as
much information as you can; pray hard,
and trust that God will lead you down the
best path for your sweet boy. That’s all I
No, please don’t beat yourself up. You’re
a wonderful mother in a very difficult and
painful situation! When your child is sick,
you just want to make it all better. But this
isn’t a scraped knee. You can’t just kiss this,
and make it go away. This is serious and
scary and hard.
Having faith doesn’t mean you don’t
worry. It means that when you worry, you
open your heart to a loving Savior, who
holds you, your kind husband, and your
sweet son in the palm of His mighty right
Have we had nights filled with worry?
More than I can count! We’ve paced the
PICU halls not sure if our beautiful daughter would survive the night. We’ve worried
about treatment decisions. We’ve worried
about frightening new diagnoses. We’ve worried about how we would take care of our
daughter’s medical needs and everything else
that needs to be done. We’ve worried about
how we would meet our other children’s
needs, when so much time and energy is
spent on medical challenges. We’ve worried
the kids’ homeschooling would suffer. And
sometimes, we’ve just worried how we would
have the energy to do all this for another day.
What’s your biggest worry right now?
Eavesdropping on a
by Dr. Anne M. Wright
So many things out of your
control, so many worries,
and so many things to do—
you just can’t sleep.
Special Needs Homeschooling